Leading the fight

against Moyamoya disease UK

The Lucas Brand Moyamoya Foundation was created in January 2024 in memory of our 8 year old son Lucas Jay Brand

Registered Charity Number: 1206889

Our Story

Leading the fight

against Moyamoya disease UK

We are aiming to increase awareness of this one in a million disease across the UK and bring much needed support to families and children suffering from this rare condition. We are working with the NHS to increase knowledge and training to find earlier diagnosis.

Please help us make that one in a million count.

WHY WE STARTED

The Lucas Brand

Moyamoya Foundation

The Lucas Brand Moyamoya Foundation was founded by Luke Brand & Danielle Eyre after losing their 8 year old Lucas Jay Brand from Moyamoya in September 2023.

We are the only charity in the UK raising awareness and supporting people and families affected by Moyamoya disease.

Registered Charity Number: 1206889

What is Moyamoya?

Moyamoya disease is a rare, one in a million, progressive cerebrovascular disorder

Upcoming Events

Latest fundraising events

Our Events

Nottingham Tandem Skydive

On Saturday 8th June 2024, 7 of us will be taking part in a tandem skydive in Nottingham. This will be Lucas’ 9th birthday and our first without him. Our tribute to him is that both Mum and Dad will be in the clouds with him. Currently taking sponsors. They can be made via our just giving page.

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Our Events

Sheffield Half Marathon

Sunday 7th April both Luke & Danielle will be running the Sheffield Half Marathon to raise money. If you would like to run the Marathon on behalf of The Lucas Brand Moyamoya Foundation please contact us at lucasbrandmmfoundation@gmail.com

You can register for the marathon at – Sheffield Half Marathon – 7th April 2024 | Run For All | Run For All

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Our Events

The Full Monty

On 30th March 2024 Lucas’ Dad and his closest friend will all be braving the nude in our first fundraising event. Along with a brilliant Soul & Motown performance and a resident DJ the night is sure to be full of laughter, dancing and a stunning finale. We will be hosting an auction for some signed sports memorabilia and prizes for both the raffle and a crazy game of bongos bingo!

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